PROJECT 1:
Improve
the situation of persons
with
deaf-blindness in Rwanda
Persons with deaf-blindness in Rwanda face unique challenges in communication,
mobility, access to information, and social inclusion. Deafblindness is a dual
sensory impairment that requires specialized support and interventions to improve
the quality of life for affected individuals. This project aims to address these
challenges and enhance the well-being and independence of persons with
deaf-blindness through a multifaceted approach.
This project, supported by MyRight through the Partnership with FSDB, started in
2011 through the coalition of three organizations of persons with disabilities (the
Rwanda Union of the Blind (RUB), Rwanda National Union of the Deaf (RNUD), and
Rwanda National Association of Deaf Women (RNADW)). In their work, they encountered
persons with the dual disability of Deafness and Blindness, which led to
significant difficulties in providing services. Persons with Deafblindness are
usually hidden and cannot communicate.
Since Deafblindness is a rare disability, individuals live far from each other and
are scattered across the country, so few people have any idea how to address their
concerns. Through this project, 167 persons with Deaf-Blindness were identified in
four districts; currently, there are more than 350 persons with Deaf-Blindness in
five districts out of thirty in Rwanda.
Interestingly, the majority of people identified in this project (60%) are children
of school age, while 40% are adults. The project grew and, in 2018, became the
Organization of Persons with Deaf-Blindness (Rwanda Organization of Persons with
Deaf-Blindness).
Project Goals
To improve communication and language
access for persons with
deaf-blindness.
To enhance mobility and access to
transportation for persons with deaf-blindness.
To increase access to information,
education, and employment opportunities.
To promote social inclusion and
community participation for persons with deaf-blindness.
To empower individuals with
deaf-blindness to advocate for their rights and needs.
Project Components
Communication and Language Access: Through this project support,
ROPDB is
trying to establish specialized communication services such as tactile sign language
interpretation, braille transcription, and tactile graphics. Providing training and
resources
to families, caregivers, and service providers on effective communication strategies and
techniques, and developing and disseminating accessible communication tools and
technologies
tailored to the needs of persons with deaf-blindness.
Mobility and Transportation: Through this project, the ROPDB is
conducting assessments to identify individual mobility needs and preferences, providing
orientation and mobility training to improve independent travel skills, and collaborating
with
transportation providers to ensure accessibility and accommodation for persons with
deaf-blindness. Exploring innovative solutions such as assistive navigation devices and
accessible public transit options.
Access to Information, Education, and Employment: The organization
advocates the Government of Rwanda to initiate and establish the education of persons with
Deafblindness, create accessible educational materials and resources for persons with
deaf-blindness, collaborate with schools, universities, and vocational training centers to
develop inclusive learning environments, provide vocational rehabilitation services and job
placement support, and advocate for workplace accommodations and accessibility measures to
facilitate employment opportunities.
Social Inclusion and Community Participation: Persons with
Deaf-Blindness
need to interact with others. Through this program, the project is advocating to the
government
to organize recreational and cultural activities tailored to the interests of persons with
deaf-blindness, establishing peer support groups and mentorship programs, conducting
awareness
campaigns to promote understanding and acceptance of deaf-blindness within the community,
and
facilitating access to recreational facilities, public events, and social gatherings.
Empowerment and Advocacy: Through support of this project, the
organization is providing advocacy training and leadership development opportunities for
persons with deaf-blindness, supporting the establishment of self-advocacy groups and
organizations, and engaging policymakers, government agencies, and relevant stakeholders to
address systemic barriers and promote the rights of persons with deaf-blindness.
Evaluation and Sustainability: The project also is helping the organization in
implementing rigorous evaluation methods to assess the impact and effectiveness of project
interventions, collaborating with academic institutions and research partners to conduct
longitudinal studies and disseminate best practices, and developing sustainability plans to
ensure the continuation and expansion of project initiatives beyond the initial funding
period. This project represents a holistic approach to addressing the
unique
needs and challenges faced by individuals with dual sensory impairment. By focusing on
communication, mobility, access to information, social inclusion, empowerment, and
advocacy, this project seeks to improve the overall well-being and autonomy of persons
with
deaf-blindness, ultimately fostering a more inclusive and equitable society.
PROJECT 2:
Advocate for the recognition of Deaf-Blindness as Distinct disability in
Rwanda
Persons with deaf-blindness represent a diverse and vibrant community that
often faces marginalization, discrimination, and invisibility in society.
Despite their unique perspectives, talents, and contributions, individuals
with deaf-blindness continue to be overlooked and underserved. This advocacy
initiative seeks to raise awareness, promote recognition, and enhance the
visibility of persons with deaf-blindness to foster inclusivity, equality,
and empowerment.
This project started in 2020 through the support of Disability Rights
Fund/Disability Rights Advocacy, It started its implementation in the
districts (Ruhango, Kirehe, and Rusizi) until now.
Advocacy
Objectives:
Raise Awareness: Increase public understanding
and knowledge about deaf-blindness, its causes, and its
impact on individuals' lives
Promote Recognition: Advocate for the
acknowledgment of deaf-blindness as a distinct
disability and a unique sensory experience.
Enhance Visibility: Highlight the stories,
achievements, and voices of persons with deaf-blindness
to challenge stereotypes and misconceptions.
Ensure Accessibility: Advocate for accessible
communication, information, and services to empower
persons with deaf-blindness to fully participate in
society.
Foster Collaboration: Build partnerships with
disability organizations, advocacy groups, government
agencies, and other stakeholders to advance the rights
and inclusion of persons with deaf-blindness
Advocacy
Strategies
Awareness Campaigns:
Storytelling and
Representation:
Accessibility Advocacy:
Policy Advocacy:
PROJECT 3: Strengthen the Local Leaders, Community members and family members of
Persons with Deaf Blindness on the Rights of Persons with disabilities focusing on
Persons with Deaf-Blindness in Muhanga District / Kibangu sector
At the district level, local communities play a crucial role in fostering inclusion
and advocating for the rights of persons with deaf-blindness. This initiative aims
to strengthen these communities by empowering families and local leaders to become
advocates and allies for persons with deaf-blindness.
By building awareness, providing support, and fostering collaboration, we can create
more inclusive environments where individuals with deaf-blindness can thrive and
access their rights. This Project started in 2023 and is being supported by Rwanda
Bridges to Justice through the European Union fund. The implementation is ongoing in
the Muhanga District / Kibangu sector.
Objectives
Empower Families:
Provide support, resources, and training to families of persons with deaf-blindness to
enhance their capacity to support their loved ones and advocate for their rights.
Engage Local Leaders: Raise
awareness among local government officials, community leaders, and stakeholders about the
needs and rights of persons with deaf-blindness and encourage their active involvement in
advocacy efforts.
Foster Community Collaboration:
Facilitate partnerships and collaboration between families, local leaders, disability
organizations, service providers, and other stakeholders to address the barriers and
challenges faced by persons with deaf-blindness at the district level.
Key Strategies
1. Family Support and Empowerment: To support persons with
Deaf-Blindness the organization provides information, guidance, and counseling to families
on topics such as communication strategies, educational options, and available support
services. It provides training workshops and peer support groups for families to share
experiences, learn from each other, and build a support network, and advocates for the
rights of families of persons with deaf-blindness, including access to financial assistance,
respite care, and other support services.
2. Capacity Building for Local Leaders: To increase the level of
awareness in Muhanga district, the organization organizes awareness sessions and training
workshops for local government officials, community leaders, and educators on
deaf-blindness, its impact, and the rights of individuals with deaf-blindness. It
collaborates with local leadership academies and training institutes to integrate modules on
disability rights and inclusion into their curriculum and encourages local leaders to
include persons with deaf-blindness in decision-making processes and community development
initiatives.
3. Community Engagement and Collaboration: The ROPDB is facilitating
community forums, roundtable discussions, and town hall meetings to raise awareness about
deaf-blindness and engage stakeholders in dialogue and action planning. It establishes
district-level committees or task forces on disability rights and inclusion, with
representation from diverse stakeholders including persons with deaf-blindness, families,
local leaders, and service providers, and develops and implements community-based projects
and initiatives to improve access to education, healthcare, employment, and social services
for persons with deaf-blindness.
4. Advocacy and Policy Influence: Through the support of this project,
the organization supports families, local leaders, and community organizations in advocating
for the development and implementation of policies, programs, and services that promote the
rights and inclusion of persons with deaf-blindness. It provides technical assistance and
resources to help stakeholders navigate the policy-making process, engage with policymakers,
and advocate for change, and monitors the implementation of existing laws and policies
related to disability rights and holds local authorities accountable for ensuring the rights
of persons with deaf-blindness are upheld.
By empowering families and local leaders and fostering collaboration within communities, we
can create more inclusive and supportive environments for persons with deaf-blindness at the
district level. Through advocacy, capacity building, and community engagement, we can work
together to break down barriers, promote inclusion, and ensure that the rights and needs of
persons with deaf-blindness are recognized and respected by all.